what I have been up to!

2 months....

That's how long since I last had food. I think I told you that pork was a fail and that I was going back on formula for a couple months to get my body healthy again. It was a tough few weeks to start with, I really loved my bacon, but after the first 3 weeks I stopped asking. I have had a busy 2 months.My Daddy left for Afghanistan, which was really sad for our family. We miss him everyday.  I am going potty in a toilet and I started preschool. My Mom says I am awesome and took to it like a fish to water! It's so much fun that instead of crying at drop-off I cry at pick-up. I am growing bigger everyday on my formula.
On Tuesday my Mom and my brother (bubba) and I went to San Diego because I had another procedure on Wednesday. We had a lot of fun going to the movies and seeing my Uncle Darren.
Some other kids in the waiting room were scared and crying when it was time for them to go back but I have done this over 12 times, so I know that I will be fine. Plus Mommy said I could have a cup after we saw the Dr. so I was ready to go when the Dr. came into the room. I am a big boy so I just walked myself into the operating room :)
The tests looked good, so now we know that my body is definitely tolerating the formula. So the next step is more allergy testing and then a new food hopefully within the next week!

It's Been a while....

Hi Friends, I know it has been awhile since I posted but we have had a busy few months. Most of you know that I failed the tuna food trial, much to our surprise. The Dr. originally told us that it was a pass, but upon further testing it looks like I had a reaction, although much smaller then any in the past. I took a break from food for about 6 weeks to get my body back to normal and then started pork. Oh man.... bacon is amazing! I ask for it every day. After 3 months of pork I am sad to say that I will no longer be enjoying this delicious meat. I have failed yet another food trial. I am really mad, and quite grumpy about the situation. Please pray for our family in the next couple months because living on liquid is not fun for me or my family. After 6 weeks of formula I will be going back in for another endoscopy to make sure my body is all clear. If it is then I will begin another food trial, this time accompanied by steroids to help keep my body clear. This is a trial medication, well the medication is not a trial but using it this way is a trial. So we don't know if it will work. Yesterday we went to the Dr. and after 4 hours got a bit of good news , some allergy tests that had previously been positive came back negative. This gives me more options for food trials!

I turned 3 last month and my parents took me to Disneyand! We had so much fun riding all the rides, I am finally tall enough for a lot of stuff!



In other news i am going to be starting pre-school in a couple weeks! Scary for my Mommy but so exciting for me! 2 days a week with a bunch of other kids my age, what could be better. Now I just need to get going on this potty training! Thanks for following my journey :) I am so lucky to have so many people who care about me!

No Tuna, no peaches, whats next?

In the past few months we have tried a couple different foods. I loved Tuna, and ate it right up! IT was so good and filling. After 2 months of eating tuna I had another endoscopy and the Dr. was very happy with the results. My mom was so happy she started crying! I finally had a food that my body would let me eat. Unfortunately the Dr. was wrong. The labs came back and although not as bad as some of the foods I have tried in the past, tuna was out. After a month of eating just formula Mommy started trying to feed me peaches, ick! I did not like them. Slimy and drippy, not to my liking at all. Mommy made them into chips and they were so good! Too bad they made me very sick! After only 3 days i was not feeling good at all and having a lot of problems. Peaches are a fail for sure! Now we are out of foods to try, or i should say out of foods that I am willing to try. I don't like anything that is slimy of wet or juicy. After eating only meat for the past year I just don't like how it feels. I am actually ok with just having formula and the Dr. gave us formula in a juice box that I LOVE!  We see the Dr. next week, and maybe she will have some ideas for me :)

Summer isn't easy

You know what I love to do? I love to go to the park and slide! It is my favorite thing to do outside. I would happily spend hours going up and down the slide behind my house. Too bad for me there are a lot of dangers at the park. A child leaving a cheese cracker on the ground can become a case of serious diarrhea, and a peanut can send me to the ER. I want to eat everything, and as a 2 year old I don't really understand why I can't. Today I got ahold of some of my brothers popcorn, and within a few hours was very sick.... this is not fun! So for those who aren't in the loop, I am eating tuna right now. I have been eating it for about 3 months (endoscopy coming nest week) and I really don't know how I am doing. My mom really hates to even guess at this point because it is sad when I fail a food trial. Pray for a clear endoscopy next week if you have a chance. We are at the end of our choices for proteins, so far I have had a reaction to chicken, turkey, beef, pork and lamb.

Lamb

Hi Everyone, last time I wrote to you I was still only drinking formula, and waiting on the Dr.'s permission to try lamb. I have now been eating lamb for about 3 weeks, and so far it seems to be going well. I am a little bit overly excited to eat sometimes, and get a bit frustrated if I don't get it when I want it. My mommy is worried that I am not tolerating it as well as I should, but fingers crossed and prayers that she is wrong. Every day I eat about 3/4 of a Pound of lamb! Last night I had it cooked on the grill for the 1st time, usually Mommy just cooks it in the crock pot, that's my favorite way :) I am growing everyday, and in 3 weeks have gained almost 3 pounds, hopefully I can keep eating food so I can keep getting bigger!

another day, another procedure :)

So I have had yet another procedure or surgery or whatever you want to call it, and for the 1st time in over a year I have a healthy esophagus. No eosinophils in sight!For me this is a Huge deal. I have been on a formula only diet for over 2 months and am ready to dig in! I am officially cleare for lamb. Why lamb you ask, well I am allergic to pretty much everything else. I am not allergic to lamb, so hopefully my body reacts well. I had my 1st taste this morning and it was delicious! I was so excited to eat that I threw my cup aside in order to get a taste of the lamb that my mom had been cooking all night in the crock pot. It is weird to eat after so long, and I had a tough time remembering to chew ad swallow, but all in all it was a success. I think I can get used to this!